
Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy
Videos
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Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy
01:51 | January 24, 2023
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Purds vs Pats – De Caria
04:11 | May 15, 2023
-
FSIN says treaties trump NRTA
01:43 | April 14, 2023
-
Political punch-up follows questions over treaty rights
01:42 | April 11, 2023
-
Purds vs Pats – Brown
03:17 | March 17, 2023
-
Sask. government tightens restrictions on independent schools
02:01 | March 9, 2023
-
Passengers offered bus ride after WestJet cancelled flight due to maintenance
01:44 | February 27, 2023
-
The newest chapter in a storied career: Rob Vanstone joins Saskatchewan Roughriders
03:06 | February 22, 2023
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Rural community says faith in Saskatchewan health care shaken after ER disruptions
01:56 | February 22, 2023
-
‘Ramen and the food bank’: SAID recipient urges province to increase benefit rates
01:51 | February 16, 2023
-
New report highlights ‘labour trafficking’ in Canada
01:31 | February 15, 2023
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University of Regina strips Mary Ellen Turpel-Lafond of honorary degree
02:19 | February 14, 2023
-
Premier Scott Moe addresses federal funding, changes for health care
01:27 | February 13, 2023
-
Canadian Paralympian Tyler McGregor skates 42 kilometres in Saskatchewan on Canada tour
02:03 | February 9, 2023
-
Tight race expected in Regina Coronation Park byelection as MLA Docherty resigns
01:36 | February 7, 2023
-
Team Knapp excited to represent Saskatchewan at 2023 Brier
01:53 | February 6, 2023
-
Sask. Premier Scott Moe expecting increased health care funding ahead of meeting
01:50 | February 6, 2023
-
Regina Flying Club looks to produce more commercial pilots in Saskatchewan skies
01:47 | February 3, 2023
-
Province, Sask. NDP trade barbs five years after Moe takes office
01:57 | February 2, 2023
-
‘You’ve got go have fun and enjoy the moment:’ Team Silvernagle ready for run at the Scotties
02:03 | February 2, 2023
-
Regina lotto worker caps 32-year career with $250K win just before retirement
01:42 | January 31, 2023
-
Evraz says ‘unfair’ steel imports to blame for coming Regina layoffs
01:29 | January 30, 2023
-
‘Tone deaf’: former Regina police commissioner decries lack of Black representation on current board
01:43 | January 27, 2023
-
Sask. has 2nd highest rate of violence against men, boys among provinces: StatsCan
01:40 | January 20, 2023
-
One professor says it’s time to re-evaluate the public health care system in Saskatchewan
01:33 | January 19, 2023
-
Zack Stringer return from injury
01:49 | January 18, 2023
-
Despite severance deal, workers worried as SLGA store closures loom
01:45 | January 16, 2023
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Workers worry for future as SLGA store closures loom
01:45 | January 16, 2023
-
2000 “anomalies”, child’s bone fragment found amid radar search at Qu’Appelle residential school
02:08 | January 12, 2023
-
‘We feel defeated’: Family responds after Saskatchewan coroner denies inquest into overdose death
02:02 | January 5, 2023
-
Saskatchewan airports optimistic for year ahead despite airline cancellations
02:03 | January 3, 2023
-
Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy
01:51 | January 24, 2023
-
Purds vs Pats – De Caria
04:11 | May 15, 2023
-
FSIN says treaties trump NRTA
01:43 | April 14, 2023
-
Political punch-up follows questions over treaty rights
01:42 | April 11, 2023
-
Purds vs Pats – Brown
03:17 | March 17, 2023
-
Sask. government tightens restrictions on independent schools
02:01 | March 9, 2023
-
Passengers offered bus ride after WestJet cancelled flight due to maintenance
01:44 | February 27, 2023
-
The newest chapter in a storied career: Rob Vanstone joins Saskatchewan Roughriders
03:06 | February 22, 2023
-
Rural community says faith in Saskatchewan health care shaken after ER disruptions
01:56 | February 22, 2023
-
‘Ramen and the food bank’: SAID recipient urges province to increase benefit rates
01:51 | February 16, 2023
-
New report highlights ‘labour trafficking’ in Canada
01:31 | February 15, 2023
-
University of Regina strips Mary Ellen Turpel-Lafond of honorary degree
02:19 | February 14, 2023
-
Premier Scott Moe addresses federal funding, changes for health care
01:27 | February 13, 2023
-
Canadian Paralympian Tyler McGregor skates 42 kilometres in Saskatchewan on Canada tour
02:03 | February 9, 2023
-
Tight race expected in Regina Coronation Park byelection as MLA Docherty resigns
01:36 | February 7, 2023
-
Team Knapp excited to represent Saskatchewan at 2023 Brier
01:53 | February 6, 2023
-
Sask. Premier Scott Moe expecting increased health care funding ahead of meeting
01:50 | February 6, 2023
-
Regina Flying Club looks to produce more commercial pilots in Saskatchewan skies
01:47 | February 3, 2023
-
Province, Sask. NDP trade barbs five years after Moe takes office
01:57 | February 2, 2023
-
‘You’ve got go have fun and enjoy the moment:’ Team Silvernagle ready for run at the Scotties
02:03 | February 2, 2023
-
Regina lotto worker caps 32-year career with $250K win just before retirement
01:42 | January 31, 2023
-
Evraz says ‘unfair’ steel imports to blame for coming Regina layoffs
01:29 | January 30, 2023
-
‘Tone deaf’: former Regina police commissioner decries lack of Black representation on current board
01:43 | January 27, 2023
-
Sask. has 2nd highest rate of violence against men, boys among provinces: StatsCan
01:40 | January 20, 2023
-
One professor says it’s time to re-evaluate the public health care system in Saskatchewan
01:33 | January 19, 2023
-
Zack Stringer return from injury
01:49 | January 18, 2023
-
Despite severance deal, workers worried as SLGA store closures loom
01:45 | January 16, 2023
-
Workers worry for future as SLGA store closures loom
01:45 | January 16, 2023
-
2000 “anomalies”, child’s bone fragment found amid radar search at Qu’Appelle residential school
02:08 | January 12, 2023
-
‘We feel defeated’: Family responds after Saskatchewan coroner denies inquest into overdose death
02:02 | January 5, 2023
-
Saskatchewan airports optimistic for year ahead despite airline cancellations
02:03 | January 3, 2023
Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy
Description
January 24, 2023
The mother of a Saskatoon boy who had to go to the USA for life-saving treatment fears her efforts to improve rare disease treatment at home will go unheard.
-
Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy01:51 | January 24, 2023
-
Purds vs Pats – De Caria04:11 | May 15, 2023
-
FSIN says treaties trump NRTA01:43 | April 14, 2023
-
Political punch-up follows questions over treaty rights01:42 | April 11, 2023
-
Purds vs Pats – Brown03:17 | March 17, 2023
-
Sask. government tightens restrictions on independent schools02:01 | March 9, 2023
-
Passengers offered bus ride after WestJet cancelled flight due to maintenance01:44 | February 27, 2023
-
The newest chapter in a storied career: Rob Vanstone joins Saskatchewan Roughriders03:06 | February 22, 2023
-
Rural community says faith in Saskatchewan health care shaken after ER disruptions01:56 | February 22, 2023
-
‘Ramen and the food bank’: SAID recipient urges province to increase benefit rates01:51 | February 16, 2023
-
New report highlights ‘labour trafficking’ in Canada01:31 | February 15, 2023
-
University of Regina strips Mary Ellen Turpel-Lafond of honorary degree02:19 | February 14, 2023
-
Premier Scott Moe addresses federal funding, changes for health care01:27 | February 13, 2023
-
Canadian Paralympian Tyler McGregor skates 42 kilometres in Saskatchewan on Canada tour02:03 | February 9, 2023
-
Tight race expected in Regina Coronation Park byelection as MLA Docherty resigns01:36 | February 7, 2023
-
Team Knapp excited to represent Saskatchewan at 2023 Brier01:53 | February 6, 2023
-
Sask. Premier Scott Moe expecting increased health care funding ahead of meeting01:50 | February 6, 2023
-
Regina Flying Club looks to produce more commercial pilots in Saskatchewan skies01:47 | February 3, 2023
-
Province, Sask. NDP trade barbs five years after Moe takes office01:57 | February 2, 2023
-
‘You’ve got go have fun and enjoy the moment:’ Team Silvernagle ready for run at the Scotties02:03 | February 2, 2023
-
Regina lotto worker caps 32-year career with $250K win just before retirement01:42 | January 31, 2023
-
Evraz says ‘unfair’ steel imports to blame for coming Regina layoffs01:29 | January 30, 2023
-
‘Tone deaf’: former Regina police commissioner decries lack of Black representation on current board01:43 | January 27, 2023
-
Sask. has 2nd highest rate of violence against men, boys among provinces: StatsCan01:40 | January 20, 2023
-
One professor says it’s time to re-evaluate the public health care system in Saskatchewan01:33 | January 19, 2023
-
Zack Stringer return from injury01:49 | January 18, 2023
-
Despite severance deal, workers worried as SLGA store closures loom01:45 | January 16, 2023
-
Workers worry for future as SLGA store closures loom01:45 | January 16, 2023
-
2000 “anomalies”, child’s bone fragment found amid radar search at Qu’Appelle residential school02:08 | January 12, 2023
-
‘We feel defeated’: Family responds after Saskatchewan coroner denies inquest into overdose death02:02 | January 5, 2023
-
Saskatchewan airports optimistic for year ahead despite airline cancellations02:03 | January 3, 2023
-
Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy01:51 | January 24, 2023
-
Purds vs Pats – De Caria04:11 | May 15, 2023
-
FSIN says treaties trump NRTA01:43 | April 14, 2023
-
Political punch-up follows questions over treaty rights01:42 | April 11, 2023
-
Purds vs Pats – Brown03:17 | March 17, 2023
-
Sask. government tightens restrictions on independent schools02:01 | March 9, 2023
-
Passengers offered bus ride after WestJet cancelled flight due to maintenance01:44 | February 27, 2023
-
The newest chapter in a storied career: Rob Vanstone joins Saskatchewan Roughriders03:06 | February 22, 2023
-
Rural community says faith in Saskatchewan health care shaken after ER disruptions01:56 | February 22, 2023
-
‘Ramen and the food bank’: SAID recipient urges province to increase benefit rates01:51 | February 16, 2023
-
New report highlights ‘labour trafficking’ in Canada01:31 | February 15, 2023
-
University of Regina strips Mary Ellen Turpel-Lafond of honorary degree02:19 | February 14, 2023
-
Premier Scott Moe addresses federal funding, changes for health care01:27 | February 13, 2023
-
Canadian Paralympian Tyler McGregor skates 42 kilometres in Saskatchewan on Canada tour02:03 | February 9, 2023
-
Tight race expected in Regina Coronation Park byelection as MLA Docherty resigns01:36 | February 7, 2023
-
Team Knapp excited to represent Saskatchewan at 2023 Brier01:53 | February 6, 2023
-
Sask. Premier Scott Moe expecting increased health care funding ahead of meeting01:50 | February 6, 2023
-
Regina Flying Club looks to produce more commercial pilots in Saskatchewan skies01:47 | February 3, 2023
-
Province, Sask. NDP trade barbs five years after Moe takes office01:57 | February 2, 2023
-
‘You’ve got go have fun and enjoy the moment:’ Team Silvernagle ready for run at the Scotties02:03 | February 2, 2023
-
Regina lotto worker caps 32-year career with $250K win just before retirement01:42 | January 31, 2023
-
Evraz says ‘unfair’ steel imports to blame for coming Regina layoffs01:29 | January 30, 2023
-
‘Tone deaf’: former Regina police commissioner decries lack of Black representation on current board01:43 | January 27, 2023
-
Sask. has 2nd highest rate of violence against men, boys among provinces: StatsCan01:40 | January 20, 2023
-
One professor says it’s time to re-evaluate the public health care system in Saskatchewan01:33 | January 19, 2023
-
Zack Stringer return from injury01:49 | January 18, 2023
-
Despite severance deal, workers worried as SLGA store closures loom01:45 | January 16, 2023
-
Workers worry for future as SLGA store closures loom01:45 | January 16, 2023
-
2000 “anomalies”, child’s bone fragment found amid radar search at Qu’Appelle residential school02:08 | January 12, 2023
-
‘We feel defeated’: Family responds after Saskatchewan coroner denies inquest into overdose death02:02 | January 5, 2023
-
Saskatchewan airports optimistic for year ahead despite airline cancellations02:03 | January 3, 2023
Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy
Description
January 24, 2023
The mother of a Saskatoon boy who had to go to the USA for life-saving treatment fears her efforts to improve rare disease treatment at home will go unheard.
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